Call me Laura; But my full name is Laura-Jane. I’m half Welsh and a Quarter English and Quarter Scottish. I’m a Young Carer for my Mum and My brother! I have an amazing brother who I love dearly! I’m Obsessed with bands, anime and art. I’ll list a few of my favourites in a bit~
Now for the depressing crap; I am servilely ill, I have so many illnesses its not funny you can’t count them on your hands! They all kind of link to this one illness called Ehlers Danlos Syndrome; It’s stupidly rare, there’s only one doctor who really knows about it in England. Basically, The illness means my joints, bones and collagen is fucked up. (that’s how we explain it, but it’s a lot more complicated) I break bones really easily, I dislocate things easily.
Because of EDS I have got other problems like I said before. I have Postural Orthostatic Tachycardia Syndrome, with means my autonomic system is messed up, I always have a temperature, my heart misses beats and my blood pressure is so low that when a machines reading it it says I’m dead which always freaks the nurses out.
I also have Scoliosis, which is a severe - well mines severe - curve in the spine; but my EDS covered it up so I didn’t get treatment early enough and it’s affecting my neck which the doctors expect to snap in the next year, leaving me unable to move my neck or back. They are talking about fusing my neck but I have just had an MRI that gives evidence of Chiari where my brain is slipping down my neck.
I finally have a diagnosis for the gastric problems I’ve been having over the last few years. I have Idiopathic Intestinal Pseudo-Obstruction where my intestines stop working fro whatever reason meaning I don’t get nutrience and when it decides to work it causes haemorrhaging.
I also have Idiopathic Gastroparesis, where my stomach doesn’t work fully since the valves don’t open automatically as they should so food sits in it and I hardly ever feel hungry so I don’t eat that much (you’d never guess by my weight) The only real treatment is electric current therapy and having a feeding tube in my nose.
With all the stress and illnesses I have developed Chronic Fatigue Syndrome so I get tired really easily and I can barely leave my house on my own as I pass out and need to sleep a lot.
I had to drop out of my first year of sixth form within the first two weeks because of losing blood and passing out which caused panic attacks when at school.
Over the years I have dealt with depression, suicidal thoughts and self harm. I kind of keep it all a secret but recently I’ve been getting help at hospitals and councillors, I have also be given sertraline to help get through it.
If anybody has experienced these and wish to talk to someone who you can relate to and understand I am willing to help, just drop a line in my ask box!
Now back to the cheery stuff~
Bokura Ga Ita
Itazura Na Kiss
My Neighbour Totoro
5 Cm Per Second
The Girl Who Leapt Through Time
Ouran High School Host Club
and more; I just can’t remember~
My Chemical Romance (of course>,<)
30 Seconds To Mars
You Me At Six
All Time Low
Black Veil Brides